Please join us for the first in-person NF and SWN Patients and Caregivers Symposium since the COVID pandemic. 

NF refers to neurofibromatosis type 1, whereas SWN includes all forms of schwannomatosis, including NF2-related SWN (previously known as NF2).  UAB and Children’s of Alabama are partnering again to provide a down-to-earth, easily understandable informational event for patients and families touched by NF and SWN. This year’s speakers include the new Director of the NF and SWN Program, Rebecca Brown, M.D. Ph.D., who takes over for Bruce Korf, M.D., Ph.D., following his retirement. Additionally, we will have a patient speaker and loads of helpful information on new scientific developments, clinical trials, drug treatments, and surgical treatments for both NF and SWN. Representatives from the companies that provide drug treatments such as Gomekli (mirdametinib), Koselugo (selumetinib), and others, will be on-site to provide information as well. We will provide the speakers, the food, live music, giveaways, and a service dog, as well as daycare and activities for children on-site. This is a great activity to meet your care team and network with other folks going through similar experiences.

This event will be free of charge, thanks to the gracious donations of Birmingham’s businesses, philanthropic donations, and funding from the Children’s Tumor Foundation.